6 Months Seizure Free!

Today marks 6 months since my last grand-mal seizure. Every since I have seen Dr. Ferrara and he’s put me on Tegratol I have been doing better and no seizures. The medicine is similar to the Dilantin I was on but doesn’t make me AS loopy. Sometimes I still space out but it’s not as long. I also get really strong headaches at times but they seem to go away pretty fast. But aside from that, the meds are keeping me from having seizures so that’s a good thing. I can finally drive today!

I did go talk to Dr. Whisnant last week about low-T and he wants to have blood work done. I just need to go up to the hospital one morning before 8am to have the blood drawn. Before 8AM!!! Yuck. I’ll post again when results are in. I also see Dr. Shertz this week for a check-up, and Dr. Ferrara next week for a check-up. I’ll follow up once I see them!



Health update

It’s been a year and 2 days since I’ve updated this blog. Believe it or not, I am still alive and kicking though!  Last weekend, we took the kids to the Outer Banks and had a lot of fun. Kolbrin has 2 teeth now, and is scooting everywhere he wants to go. Kobie is doing good, growing like a weed and I hate it! I wish both of my boys would stay small forever. It is what it is though.

Saturday night I went to bed around 10:45 because I was exhausted. I was woken up around 12:00 with a bunch of strange people in my bedroom, plus my wife, neighbors, and father in-law. Those strange people were EMS workers. I asked what was going on and why they woke me up. Amanda told me I had a seizure and I asked if I was okay. Nobody knew. They loaded me up on a stretcher and took me to Franklin Memorial Hospital, where Dr. Lane ran bloodwork and a CT Scan on my head. Everything came back normal, and he thinks the seizure was caused by scar tissue. It was a very scary night though to say the least! I am now back on Dilantin to control seizures. I have to follow up with Dr. Shertz Friday morning so once I find out anything I’ll post it on here to let y’all know! Thank you everyone for the thoughts and prayers.



It’s a boy!

I just wanted to give a quick update. We went this week to see the sex of the baby, and it’s a BOY! Jayce Maxton Robertson is due on August 18th. If you know me, you know I’ll probably make a website for him to showcase his photos. 😉 I cannot WAIT to tell Dr. Shertz



Against all odds..

If you have known me a while, you know I am the most stubborn person you’ll meet. If you tell me not to do something, I’m going to do it. If you tell me I can’t do something, I’m going to prove you wrong. When I was diagnosed with my cancer…, I was told my chances of living were very slim. I proved the doctor wrong. When the doctor told me after my second brain tumor I probably wouldn’t be able to walk again, I proved him wrong. Doctor Shertz told me I would never be able to have kids again, and guess what, yep… I proved him wrong! We found out Christmas Eve Amanda is pregnant, and is due in August. We’re both very excited and this is truly a miracle baby!

I will post updates here as the pregnancy progresses, as well as on my Facebook page.



Latest update

I know it’s been a long time since I’ve updated this blog, and I’m sorry for that. I went a few weeks ago to get a CT scan and a brain MRI as a normal checkup. I spoke with Dr. Buck and Dr. Shertz last week and the scans look good. The tumors are still there but not growing or spreading so that’s still good. My lungs are thick, but that’s because of everything Dr. Shertz said. I did talk to him and Dr. Buck about me spacing out, and Dr. Shertz thinks I am having seizures. Between those 2, they’re going to find a neurologist to send me too in the area. Aside from that, everything is just peachy with me! I just found out (as I am typing this) Amanda just passed her HESI for school, and will be graduating next week. I am so proud of her! She’s going to make a great nurse.
I hope everyone had a great Thanksgiving, and ate lots of Hokie birds. Christmas is right around the corner, and I hope everyone has a great Christmas. I am so thankful to be here to share it with my family and friends. I go back to Dr. Shertz in May so I’ll update again at that time. Thank you all for your support.



Just a friendly update

Hey guys! I just wanted to give you a quick update on myself. 2 weeks ago I went for an MRI of my head, and a full body CT scan as a normal checkup. On my way home, Dr. Buck called me, and said that everything looked great with my head. The 2″ hole in my head had started to collapse and was very little dura-bond left they could see. The brain is filling itself back in. That’s a good thing!

I followed up with Dr. Shertz this week, and he said everything looked good. The scans only showed scarring in the lungs, and a slightly enlarged spleen. The liver was back to normal size with no residue of tumors or any sort of scaring. He bumped up my scans from every 3 months, to every 6 months. He also made me an appointment with Dr. Harrons office so I can discuss my ‘spacing out’ issue, and determine if Dr. Harron needs to do anything or if I need to see a Neurologist to see if this will ever go away. Hopefully it will.

Everything else in life is going good, I’ve found a lot of my old friends on Facebook, so I can keep up with people a little better. Amanda is doing good in school, I am so proud of her. Kobie is doing excellent in school and he makes us both so proud. Sadie is growing up super fast, and is spoiled rotten. We’re all excited about going camping this summer. We’ve got several camping trips planned, and we can’t wait!

I will post more updates when I talk to Dr. Harron to see what’s going on with that. Until next time friends, have a great spring and enjoy the weather. BYE!



Happy New Year!

Hope everyone had a wonderful Christmas, we certainly did. A few weeks before Christmas Kobie came home from school with a letter he wrote to Santa asking for a real little puppy. He showed us and kept asking for a “real little puppy” over and over and over. He even had to buy a carrier for it when him and my mom were out shopping. SO for some unknown reason Santa caved and we now have a 9 week old Miniature Schnauzer named Sadie. I’m not sure who loves Sadie more Josh or Kobie! She is already extremely spoiled by Josh since they are home together all day.

We have all enjoyed spending the holidays together. Kobie went back to school this past Monday and I start back to school on Monday. I should graduate this year!!

I read a book today, “Five Lessons I Didn’t Learn From Breast Cancer (And One Big One I Did)” The author said in the book that she didn’t consider herself a survivor even though she was diagnosed, treated, and had been in remission for years. She said she didn’t consider herself a survivor because she didn’t have a serious brush with death. She said the term “cancer survivor” came from the National Coalition for Cancer Survivorship and was overused. She said at what point do we term ourselves survivors, some people call themselves survivors as soon as they are diagnosed, some when they finish treatment, some when they do in remission. She said death had just sent her a “Thinking of You” card.

After finishing the book I asked Josh if he considered himself a survivor and he quickly said no. I asked him why and he said because he still had cancer. He asked me what I thought and I said heck yeah, I do consider him a survivor! He has survived cancer for over a year and 7 months, he has survived harsh chemotherapy, radiation, two brain surgeries one of which he had so much brain inflammation he lost his vision and ability to move his body before the surgery. For Josh I think that death had pulled into our driveway and parked the car. He has survived a lot that at times neither I or his oncologist thought he would!

Saturday will mark the one year point from the big seizure and second brain tumor, probably the scariest night of my life. If you go back and read our blogs from last year, on January 3rd I blogged about how thankful I was that our live was calming down and starting to be normal again and then just 6 days later it was turned upside down again, which is exactly why you should live each day as if it was your last!

The next update should be in a couple of weeks since Josh has a CT scan coming up in a couple of weeks along with a doctors appointment the week after that!!



Merry Christmas

santa-claus-clothing1 I just wanted to take a moment to tell everyone that I hope you have a very Merry Christmas, and a very safe holiday. The weather forecast is still early but so far, it looks like there’s a good chance to have a white Christmas here in the Rocky Mount/ Roanoke area. You know how the weather changes though! I know most of you will be traveling so please be careful. Also this Christmas, take a minute to sit back, and realize what the season is all about. It’s fun to shop, open presents, decorate, all of that fun stuff. Sometimes we get so carried away in all of the holiday hustle and bustle, that we forget the true meaning of Christmas. Embrace your family every chance you can, hug your kids, spend time with them, spend time with your family, love them and make them know that you love them. Be thankful that they are in your life, and be thankful for the non-materialistic things that you have in your life. Your health, and your family and friends. That’s what means the most. Possessions can be repossessed but love and true friendship can’t. Also be thankful if you have a house, food, transportation, a job, etc. There’s a lot of people who don’t.

Everything is still going good for me. I have been trying to keep myself busy by keeping the house clean, getting things ready for Christmas, etc. I went yesterday and seen one of my buddies, Sysy. It’s been a long time since I’ve seen her and it was great to see her. Anyway I just wanted to tell everyone Merry Christmas and have a safe holiday season!!



Thanksgiving

This post is a few days late, and I apologize for it. With the holiday, things just got kinda hectic and time passed me. This is my favorite holiday of the year, because Black Friday is the one day I look forward too all year round. It’s something about the thrill of getting up at 2am and heading to Roanoke to do shopping and be in the crowds. I love doing it and wouldn’t miss it for anything. Last year in 2008, I was actually trying to delay my first brain surgery for Black Friday. I told Dr. Harron that I wanted to postpone my surgery a week so I could go shopping. He said I didn’t have a week to wait, my brain tumor was growing too fast. So Friday morning comes around, and I went in for brain surgery. He kept me in the hospital until Monday morning, and let me out of the hospital. Friday morning, I was up at 2am and in Roanoke Black Friday shopping! I had ace bandages and all sorts of gauze wrapped around my head, just so I could be out in the crowd shopping. Talk about dedication! This year, Amanda had to work so things were a bit different. We did the normal Thanksgiving dinner just her, Kobie, and I here at home and had lots of food. I really enjoyed that since we didn’t have to go anywhere. I think it’s the first year we actually got to spend it as a family without having to go places. Then we went to bed around 8pm to get up early. We were done by 9am, and came home for Amanda to go to bed for work. We finally got the tree up tonight! 🙂

I just want everyone to sit back a minute, and think about the things in your life. Think about what surrounds you, what makes you smile each morning, what keeps you going. Think about what you’re really thankful for. I am thankful to be alive today. I am thankful that I have been able to kick cancers sorry ass this far, and be a husband and a daddy. I can’t let it take me yet. Too much is depending on me. 🙂 I am thankful that I found and met the woman of my dreams and was able to marry her. I am thankful that next week I can say we’ve been together 7 years (happy anniversary baby ;)), I am thankful that we have the most perfect little angel in the world, and that he’s smart, healthy, happy, and he is probably the best 5 year old kid you’ll ever meet. I am thankful to have some of the best friends in the whole wide world who have stood by me and cared about me. I am thankful for my family, I am thankful for YOU reading this, because you took time out of your day, to read my blog and check on me. Thank you. Thank you to everyone, and I hope you had a wonderful Thanksgiving!!



Latest CT results

It’s that time again, time for another CT scan! I went last week to get my CT scan, and for some reason this time I’ve been really scared of the results. I am always scared when it comes time for the results. This time, they didn’t do a scan of my head, which I am very unhappy about. With 2 2″ brain tumors developing in a matter of a couple of weeks of one another, I want a CT done and I want to know the results. I hate waiting. I’ve never liked to wait. Not on something this serious, but whatever.
I went and saw Dr. Shertz today to talk about my CT results. Everything still looks good according to imaging, the tumors are still stable, no new growth and no new tumors. My shoulder and side is hurting, I don’t know why but Dr. Shertz wasn’t really concerned with it, being that imaging was fine. I go back in January for my next set of scans, lab work, and office visit. At least I don’t have to worry about it between now and until after Christmas. I hope everyone is doing good, and gearing up for Halloween. If you know me, you know my favorite holiday of the year, is Black Friday. Even if I can’t get anything, I still like being out in all of the rush. It’s just fun. Ads are already out for Black Friday and I am excited about it. Hmm, let’s see, what else is new.. Amanda has the H1N1 flu right now, and hasn’t been feeling great. Dr. Sadaat at Smith Mountain Lake Family Practice (our family doctor) has given all of us Tamiflu to help us from getting it. I did discuss this with Dr. Shertz today, and he said that since I’ve been of chemo for a year that my bodys immune system is back to normal and if I get sick, I’ll be as sick as the rest of the general population.

I went to the UNC vs. Florida State game last week. It was a great game, and we were kicking butt up until the second half, when FSU came back and won 30-27. Oh well. We come to Blacksburg Thursday to take on the Hokies. I highly doubt we’ll be able to pull it off but who knows. As bad as we get beat sometimes, we do have one of the best defenses in the country! For all of you people who like to pick on me for being a Tar Heel, that’s okay. Basketball season is about to begin so guess what, it’s MY turn! My Tar Heels always make me proud in basketball. After all, we ARE the 2009 National Champions!.. Let’s just hope we can keep our strength this year. 🙂 That’s about all I have to say, but I am going to end this post with something from one of my very good friends, Brooke. These are her words of wisdom and I always looked up to her. Brooke, I love you and I miss you so much. I’m so thankful you’re out of your pain

BROOKE – Star City Roller Derby terror called GRRRR now skates in heaven 🙂

“Well Life’s always been crazy for me, but recently “shat” has definitely hit the fan…I believe God wants the best for me…I believe life’s not always fair and I certainly believe you can always make the best out of what’s handed to you and you create your situations..

This is my story and things you most likely didn’t know about me…I want everyone in my life to know…beware this is a long one.

My life’s always been pretty dang good…growing up I had two awesome parents I looked up to and always were there for me and did everything for me. A big family that were all hero’s to me and I loved very much…I played sports, went to a small Christian school had good friends growing up and went to church every weekend since I could remember…I was always a little dorky and never that smart, but hell I loved life!!! Everything was brilliant and innocent…I felt like I could do anything I put my mind to! EVEN FLY (when I was a youngin)!!

As I got older things got more confusing…I learned my parents weren’t perfect…the church had more problems than I thought was allowed…I wasn’t good enough for my friends I grew up with they eventually disappeared…I learned my “magic cape” would never make me fly…and I didn’t feel comfortable in my own skin anymore…sure as hell couldn’t ever win a spelling bee much less get an A on my tests :op…I was lost…hurt, confused, frustrated wanting things to be back how they were…”perfect”.

As I grew into a blossoming young teenage lady I then figured I’d take control of what I didn’t understand and make my own reality…I thought I was so flippin smart!!!! GOD was I mistaken. Now, I am not gonna go totally into it, but I did some dumb a$$ ish …I am surprised I came out ok haha! I thought the dumbest people were cool…I thought smoking pot, and drinking made me an independent adult…Sex was this new cool toy I could play with and no consequences would ever come from it…I was a not so good person to say the least. I disobeyed everything I had learned and fought with my parents everyday it seemed…nothing was good!

I hated who I had become and thought my life was OVER! I wasted a lot of time and hurt a lot of people…honestly, I was searching so hard for the answers of life, I forgot what life was all about………simply just loving myself and life for what it is…relying on God to do what was best for me.
I had life going how I wanted it to for the past year…I started working towards a career I was loving…I was in love…I had good friends…roller derby…a nice car…healthy…I felt pretty and smart…I must admit I didn’t put trust in God…I didn’t have faith he’d do what was best for me…so I made all my own decisions and put faith in only myself…seeing a pattern yet? Yea…I am a stubborn hard head! If ya didn’t know that already ;o) I made some stupid decisions…I started trying to find God again when I realized I was lost and sad without him.

My life has now come to a screeching halt…I was diagnosed with cancer this past year and they can’t cure it. I have hundreds of little tumors in each one of my lungs…..one in my back and breast.. It’s the rarest of the rare. Only .6% percent of cancer patients have had it meaning there haven’t been enough studies on it for a cure and no treatments they have will stop it…so where does that leave me. Where does this leave my heart? Broken…my brain is full of questions, and my body wants to give up. Should I ever get married? Should I even think about children? Should I stop working as much and just enjoy life?

BUT the real question I got to ask is to God…what DO you want me to do? Will God heal me and show Himself to people through his power?…Will He use my life to do His work…is that why he put a time limit, so I would take him seriously? I am not sure, but I do know this…even though I have a time limit…everyone does…I was just lucky enough to find mine out so I can act now and stop wasting life like it’s always gonna be there…it’s not. Who knows I might die in a car accident tomorrow…but my point is not to think about death, but to celebrate life everyday that’s one thing I never did. I complained and cried about what I couldn’t understand and why God did this or didn’t do that…be positive ask God for peace and strength and live life the best to your ability…remember no one’s perfect ask for forgiveness and the ability to do better. You never know when you will loose a chance…only thing you can do is count on God even if you think he’s not there for you or done you wrong…open your heart and trust …Pray he’ll heal you and take away your pain.

Give your life to Him before you figure out you have none left. Don’t be like me and have to get a huge kick in the butt before you start to believe or do something to change your life. DO IT NOW!!!

Stop being so self centered and selfish… I believe that God could heal me, but honestly I think I know now why God has said no to me. He has let me learn how to be tough and to have the knowledge, so I can spread the word. Hopefully people will be wise and not make foolish mistakes like me…no matter how hard it gets the only thing that ever saved me was God….the only thing that gives me real peace is his love…I believe I am supposed to use this “tragedy” to spread his word.

God’s always been a mystery and put down a lot by most people these days…but the truth is we all have tried to take control, lost sight of God, and created our own “demons” within us that could really be anything… Doubt, fear, anger, sickness, “bad luck lives”, alcohol, drugs, sex…anything.

Do not fear the unknown…accept it and love and live…love everyone with a Godly understanding and heart……..read His book to find out who he really is for yourself not from you’ve heard all your life…believe he can do the impossible and hold tight to your faith!

I love everyone and I am sorry to anyone I have ever hurt…this was not intention…all I ever want is to show you the real me….who is stronger than I have let myself be!

Who knows…..I could be healed…watch my niece grow into a beautiful young lady (btw she is the best thing ever she’s definitely a gift from God), get married, have kids of my own, and grow old to have those “cool old lady hair dues”, and crazy grandkids 🙂 …but in the mean time I want to praise God and let everyone in the world know it…hopefully my disasters will bring others eternal life…and I’ll be just as happy…”