Benefit – Addresses needed

Hey everybody!

First of all, ignore the countdown in the upper right hand corner for the days until Disney. We have like 13 days left. I am working on the code right now to get it fixed so bare with me.

As I mentioned in my last post, Amandas mom and Mel & Tim are working on a benefit for me. It’s June 20th from 3pm – 8pm at West Lake Country Club. There will be food, a band, swimming, a silent auction and more. I will post more when details are given to me. In the meantime, please email either amanda[at]dreamscapetech.net or josh[at]dreamscapetech.net with your mailing address, if you would like to be sent an invitation. You don’t have to have an invite to come, but it’d kinda give us an RSVP. I would love to see everyone come and I’d love to meet some of you wonderful people who have been keeping up with me through the past year! (:



Wow, a GREAT surprise…

I don’t know where to start with this.. Hi everyone.. That’s always a good starting line. Earlier today, Amandas mom called and said that her grannie wanted to take us out to dinner. I was a bit hesitant, considering I was suppose to coach Kobies first t-ball game tonight. But family is always first. So we lounged around today and at 5:45 Susan (Amandas mom) came to get us. We then went to pick up granny at her house. We were headed to Fishermans Galley here in Rocky Mount for dinner. When we got there, her dads police car was there so I was like “cool, he’s going to meet us for dinner”. As we were walking in, her grandparents showed up and we all went in together. When we went in, we went to the back room where the big parties set. I didn’t even think nothing about it. When we got in the big room, there was a large table setup, with a table of people beside of us I didn’t recognize. Mel, Tim, and Courtney were at our table. I thought it was pretty cool we all met at the same time for dinner. In case you don’t remember Mel, Tim, and Courtney, they are great friends of ours, who have helped us so much around Christmas, and all through this past year. We think the world of them. Come to realize, the family next to us was their family and friends as well. We all had a big dinner together.

Once we got settled in, gave hugs and so forth, we all sat down. Courtney handed Kobie a bag with stuff in it. It had a pin of Mickey Mouse, and a pin of Donald Duck. He also got 2 Mickey Mouse puzzles, and a Mickey Mouse notepad. He loved it. Mel asked Kobie to hand me the clipboard. It had a note on it, and she asked me to read it out loud. It says “Josh and Amanda and Kobie, on May 14th you will be leaving for a 7 day vacation to Disney World!! Compliments of your friends and family- Enjoy! You deserve it!” At this point, my eyes were filled with tears as were Amandas. I was speechless. Our family (this includes Mel, Tim, and Courtney. I don’t consider them friends, I consider them family) and friends had gotten Amanda, Kobie and me a 7 day/6 night stay at Disney World in All stars Movies Resort. This also includes all of our meals, plus tickets to get in Disney for all of the days. It also includes round trip airline tickets from Raleigh to Orlando, and the Disney bus to/from our resort.They had even called Amandas work, scheduled for her to be off as well as calling Kobies school and getting him out for the week.

I don’t really know what to say, except THANK YOU to everyone who made this possible. I have wanted all of my life to go to Disneyworld, and frankly have never been able to afford it. I wanted to take Kobie but we never had the money to do it. This is honestly, a dream come true. We fly out of Raleigh on May 14th for a direct flight to Orlando and will be gone 7 days. I will post TONS of pictures once we get back and I have them up here. Thank you so much everyone, honestly I can’t express my gratitude.

On June 20th, they are also doing a benefit for Amanda and I at Westlake Country Club in Moneta, with a silent auction, bands, food, etc. It’s going to be fun, and I hope to see everyone there. I am going to make a seperate post and page with all of the details, once they become available to me. I am kinda speechless right now still, but thank you again. All of you guys are angels, and you make dreams come true.

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More MD appointments

Josh had two doctor appointments on Friday.  His first appointment was with Dr. Schertz. His second appointment was with Dr. Buck.  Since Dr. Buck’s appointment went better I will begin with that.  His head is healing well; his hair will start to grow back very slowly.  Since the radiation kills the hair at the root it takes it a while to grow back.  We asked once again about the disorientation/lack of coordination which Dr. Buck said was normal and normally only lasts 3-6 months.  Dr. Buck wasn’t sure how much longer if any it would last for Josh since he had 2 brain surgeries along with radiation but we are hoping it will being to subside as we are now 3 months since his last brain surgery.  Since he has another follow up with Dr. Harron next month he won’t see Dr. Buck until September.  Dr. Buck said if Dr. Harron doesn’t order an MRI before then he will order one at the appointment in September. 

Onto the first appointment, Dr. Schertz.  The appointment didn’t go quite as well as we had hoped.  Dr. Schertz did more lab work and discussed the next ct’s which will be the first week in May.  We already have them scheduled but I can’t remember which day.  Josh asked how his prognosis looked now, before the brain tumors we were told that he had about a 70% chance of becoming cancer free.  Dr Schertz said that due to the recurrent brain tumors and the aggressive tumors that did not respond well to chemotherapy his percentage has decreased considerably.  Josh remains upbeat, like nothing has changed.  I am a little down but I will be fine.  Once again, we have been reminded how fragile life is.  We have decided to take a vacation this year.  We had decided against it earlier this year due to finances and vacation time, and the fear of getting somewhere and Josh getting ill. Due to the recent changes medically we have decided that there will never be enough vacation time or money or certainty that something bad won’t ever happen and we both think that we need a family vacation together this year so if you have any ideas email us! We have also decided that it would be best if Josh remained out of work, we will reconsider him returning after his next CT.  Dr. Schertz said that it would be best if Josh stayed out of work, due to his lack of hand-eye coordination.

            I hope everyone had a wonderful Easter; ours was good despite me sleeping/working.  When I got home from work this morning Kobie had just woke up so we woke Josh up and went though the basket.  Then we hid eggs and found them then I laid down to sleep and Kobie hid more eggs…real eggs…and neither Josh or Kobie remember where they hid them.  So…hopefully we will find them before they rot.  After all, he is only 5 he couldn’t have hid them that good right?

 

I got this emailed to me, I loved it, and it reminded me so much of Josh.

John is the kind of guy you love to hate.   He is always in a good mood and always has something positive to say.  When someone would ask him how he was doing, he would reply, ‘If I were any better, I would be twins! He was a natural motivator. If an employee was having a bad day, John was there telling the employee how to look on the positive side of the situation. Seeing this style really made me curious, so one day I went up and asked him, ‘I don’t get it!’ You can’t be a positive person all of the time.  How do you do it?’ He replied, ‘Each morning I wake up and say to myself, you have two choices today.  You can choose to be in a good mood or…you can choose to be in a bad mood I choose to be in a good mood.’ Each time something bad happens, I can choose to be a victim or…I can choose to learn from it.  I choose to learn from it. Every time someone comes to me complaining, I can choose to accept their complaining or…I can point out the positive side of life.  I choose the positive side of life.’ Yeah, right, it’s not that easy,’ I protested.’ Yes, it is,’ he said.  ‘Life is all about choices.  When you cut away all the junk, every situation is a choice.  You choose how you react to situations.  You choose how people affect your mood. You choose to be in a good mood or bad mood.  The bottom line:  It’s your choice how you live your life. ‘I reflected on what he said.  Soon hereafter, I left the Tower Industry to start my own business.  We lost touch, but I often thought about him when I made a choice about life instead of reacting to it. Several years later, I heard that he was involved in a serious accident, falling some 60 feet from a communications tower. After 18 hours of surgery and weeks of intensive care, he was released from the hospital with rods placed in his back. I saw him about six months after the accident. When I asked him how he was, he replied, ‘If I were any better, I’d be twins…Wanna see my scars?’ I declined to see his wounds, but I did ask him what had gone through his mind as the accident took place.

‘The first thing that went through my mind was the well-being of my soon-to-be born daughter,’ he replied.  ‘Then, as I lay on the ground, I remembered that I had two choices:  I could choose to live or…I could choose to die.  I chose to live. ”Weren’t you scared?  Did you lose consciousness?’  I asked. He continued, ‘…the paramedics were great. They kept telling me I was going to be fine.  But when they wheeled me into the ER and I saw the expressions on the faces of the doctors and nurses, I got really scared.  In their eyes, I read ‘he’s a dead man’.  I knew I needed to take action. ”What did you do?’ I asked. ‘Well, there was a big burly nurse shouting questions at me,’ said John.  ‘She asked if I was allergic to anything ‘Yes, I replied.’  The doctors and nurses stopped working as they waited for my reply.  I took a deep breath and yelled, ‘Gravity” Over their laughter, I told them, ‘I am choosing to live.  Operate on me as if I am alive, not dead.’ He lived, thanks to the skill of his doctors, but also because of his amazing attitude…I learned from him that every day we have the choice to live fully. Attitude, after all, is everything. Therefore do not worry about tomorrow, for tomorrow will worry about itself.  Each day has enough trouble of its own.’  Matthew 6:34.



Congratulations, Robert Stone!

Robert Stone, is one of my nurses at Roanoke Memorial on 10 south. He’s one of the greatest nurses on that floor. When I first started “living” at the hospital basically, it was a tremendous change for both Amanda and I. Robert was my first night shift nurse there. He took such good care of me, and Amanda. Ever since I’ve been through this journey, Robert has taken such great care of us and done everything he could for us to make us feel at home at the hospital. Thank you Robert! Here is a story from the American Cancer Society:

Stone Honored with ACS Award
The American Cancer Society (ACS) recently named Robert Stone, R.N. as recipient of the 2009 Lane Adams Quality of Life Award recognizing exemplary cancer care. Robert works on 10 South in Oncology at CRMH.
Robert was awarded the honor for his excellence in caregiving and for innovatively and consistently providing outstanding compassionate care to cancer patients and their families. The ACS program is the only national multidisciplinary award for excellence in caring.
Robert is one of 15 award recipients who will be honored at the ACS board of directors meeting in Atlanta on May 8. Congratulations Robert!

I have not posted an update lately well because there are no updates at this time. I do however see Dr. Buck and Dr. Shertz on Friday, so I’ll post more then, I promise! 🙂

For the meantime, I have added a new page, “About Dr. Harron

On a lighter note, my boys have finally made it to the NCAA championship, I am ssoooo happy and proud of my Tar Heels. Let’s go Carolina!

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