Unfortunately today did not get any better. He was in severe pain all day. Between the nurses, the oncologist, the orthopedic surgeon, and me we bugged Dr. Harron to death today. He did finally give Josh another steroid tonight and is letting him had some stronger pain meds. This morning the surgery was set for …
Author Archives: Amanda
We had a bad night
Around 1am Josh woke me up moaning. He said his head hurt but it hurt where the tumor was and it was the worst pain ever. We got some pain meds but I stayed up watching him all night because of his risk for seizures. His Dilantin level needs to be between 10-20 and his …
The vertict is….
Surgery followed by radiation. This morning first thing I called Dr. Schertz at the cancer center and his secretary told me he was still on vacation until next Monday. So I called Indiana University and was told that Dr. Williams is on medical leave…indefinitely! So I left a message for Dr. Hahn to call me. …
Is this still curable?
I finally bit the bullet and asked Dr. Fintel today. The answer to my most dreaded question was “absolutely” He said we still have several options left: salvage chemotherapy, radiation, or a stem cell rescue. We are still not sure what will happen to the brain tumor. We expect IU to say take it out …
Lunchtime update
Dr Harron came in this morning and agreed to have Josh moved to 10south, the oncology unit until the surgery. We requested to see Dr. Fintel today since he was the doctor on the oncology floor. We have seen him a couple other times since May and we really like him. Since Dr. Schertz is …
Here we go again….
Last night Josh called me when he got off at 5pm and said that in the past few minutes he has because uncoordinated again, like last time before the brain tumor was discovered. I called and paged Dt. Harron (the brain surgeon) because Dr. Schertz is on vacation. Dr. Harron didn’t call back within a …
Dr. Schertz appointment
Dr. Schertz office visit was Friday, it went well. He basically went over the lab results which we already knew. Josh has an appointment in 2 weeks more more lab work. February 3rd he has another CT of the chest, abdomen, pelvis, and brain we have an office visit a few days after that for …
Goodbye 2008
And so another year came to a close…as I sit here reflecting back over 2008 I look ahead to 2009 with hope…courage…..determination! Yesterday Josh went to his last doctor’s appointment of the year; he had a follow-up with the brain surgeon who has released him from all restrictions. He doesn’t have to see Dr. Harron …
1 more Christmas Present
I hope everyone had a wonderful christmas full of lots of family time. Ours didn’t have enough family time but we thoroughly enjoyed the time we did have! We were truely blessed this christmas. We had lots of help from a few people we knew and lots of help from a few people we didn’t–without …
Priceless
The cost of a brain surgeon: $10,000 The cost of the brain surgery: $50,000 Getting to see the look on Josh’s face as Zoe rubs his head just 1-1/2 weeks after brain surgery….priceless!