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Joshes Journey

Kicking cancers ass, one day at a time

Category Archives: Life in general

Day by day…

..we will make it though this!  I got to the hospital this morning around 9am and Josh was sleeping.  When he finally woke up he said he had an itch on his nose so I tried to scratch it.  He got frustrated that I couldn’t hit the spot and he can’t move his right arm …

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Posted byAmandaJanuary 15, 2009Posted inLife in general1 Comment on Day by day…

Had a bad day.

Unfortunately today did not get any better.  He was in severe pain all day.  Between the nurses, the oncologist, the orthopedic surgeon, and me we bugged Dr. Harron to death today.  He did finally give Josh another steroid tonight and is letting him had some stronger pain meds.  This morning the surgery was set for …

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Posted byAmandaJanuary 13, 2009Posted inLife in general2 Comments on Had a bad day.

We had a bad night

Around 1am Josh woke me up moaning.  He said his head hurt but it hurt where the tumor was and it was the worst pain ever.  We got some pain meds but I stayed up watching him all night because of his risk for seizures.  His Dilantin level needs to be between 10-20 and his …

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Posted byAmandaJanuary 13, 2009Posted inLife in general1 Comment on We had a bad night

The vertict is….

Surgery followed by radiation. This morning first thing I called Dr. Schertz at the cancer center and his secretary told me he was still on vacation until next Monday.  So I called Indiana University and was told that Dr. Williams is on medical leave…indefinitely!  So I left a message for Dr. Hahn to call me.  …

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Posted byAmandaJanuary 12, 2009Posted inLife in generalLeave a comment on The vertict is….

Is this still curable?

I finally bit the bullet and asked Dr. Fintel today. The answer to my most dreaded question was “absolutely” He said we still have several options left: salvage chemotherapy, radiation, or a stem cell rescue. We are still not sure what will happen to the brain tumor. We expect IU to say take it out …

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Posted byAmandaJanuary 11, 2009Posted inLife in generalLeave a comment on Is this still curable?

Here we go again….

Last night Josh called me when he got off at 5pm and said that in the past few minutes he has because uncoordinated again, like last time before the brain tumor was discovered.  I called and paged Dt. Harron (the brain surgeon) because Dr. Schertz is on vacation.  Dr. Harron didn’t call back within a …

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Posted byAmandaJanuary 9, 2009Posted inLife in general2 Comments on Here we go again….

Dr. Schertz appointment

Dr. Schertz office visit was Friday, it went well.  He basically went over the lab results which we already knew.  Josh has an appointment in 2 weeks more more lab work.  February 3rd he has another CT of the chest, abdomen, pelvis, and brain we have an office visit a few days after that for …

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Posted byAmandaJanuary 3, 2009Posted inDr. Shertz, Life in generalLeave a comment on Dr. Schertz appointment

Goodbye 2008

And so another year came to a close…as I sit here reflecting back over 2008 I look ahead to 2009 with hope…courage…..determination! Yesterday Josh went to his last doctor’s appointment of the year; he had a follow-up with the brain surgeon who has released him from all restrictions.  He doesn’t have to see Dr. Harron …

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Posted byAmandaJanuary 1, 2009Posted inLife in generalLeave a comment on Goodbye 2008

1 more Christmas Present

I hope everyone had a wonderful christmas full of lots of family time.  Ours didn’t have enough family time but we thoroughly enjoyed the time we did have!  We were truely blessed this christmas.  We had lots of help from a few people we knew and lots of help from a few people we didn’t–without …

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Posted byAmandaDecember 26, 2008Posted inLife in general2 Comments on 1 more Christmas Present

Merry Christmas everyone

Hey everyone! It’s that time of year again. I am writing this blog entry today because I know that a lot of you only have Internet access at work, and a lot of people are off the entire week next week, so I wanted to be sure to get this to you prior to Christmas! …

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Posted byJoshDecember 19, 2008Posted inLife in generalLeave a comment on Merry Christmas everyone

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